Everyone’s experience is different. Anyone experiencing a concussion or TBI has a different story, different outlook on life, and different symptoms, their experience of EPIC Treatment is going to be different as well. With that said, here’s my experience. I was injured 17 years before I received treatment, and you can read more about how I got my injury in another post here if you are interested. Hopefully, my story validates some of your experience, gives hope, and provides direction. To begin with, I was surprised my schedule wasn’t more packed with activities. I questioned if this would work. I received over 25 hours of treatment during the week when I was expecting a 40 hour week. By the end of the week, I appreciated that I didn’t have a 40-hour schedule because I don’t think my brain could have handled it. Day One: I walked into the office on Monday morning. I was handed the check-in questionnaire. I filled out the Post Concussion Symptom Scale (PCSS) check-in and check-out questionnaire each day of treatment. CFX uses the questionnaires to monitor symptoms throughout the week, and is used as a measurement in their research. As I sat down to complete the simple form, I started to cry. I’m not against crying, but it takes a lot to push me to tears. I wasn’t sure what was going on. I called my husband. He said a quick “Focus, give it your best, and I love you.” Then I met Porter. Porter is one of the Patient Care Coordinators and I really felt support from him while I was at Cognitive FX. I didn’t have any idea what to expect. I was nervous. He gave me a tour, and we got started. *Sometimes you might also have an fNCI on your first day. I got my first scan done before I started treatment for my brain injury.
I was in an auto accident on January 2, 2001. I received a severe TBI, broke my back, pelvis, jaw, ribs, and pretty much every bone in my body. I was grateful to be alive, but after a few years I had accepted the fact that I was going to be deficient for the rest of my life.
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Past patient, Anna Empey shares her experiences in a series of blog posts including "Perspective After a Brain Injury," "10 Things I Wish I had Know Before my Brain Injury," and here in this post. When I first was recovering, I felt like I couldn’t find words to write about my experience. I couldn’t explain either written or vocally how I was feeling or what I was going through. Over time, writing became something that helped me learn how to gather my thoughts and express myself. I focused more on the act of writing something down rather than if it was written perfectly or exactly accurate. Continually writing helped me find ways to get better at it.