Past patient, Anna Empey shares her experiences in a series of blog posts including "Perspective After a Brain Injury" and here in this post. I sustained my first concussion in July of 2011, playing broom hockey. My roller skates slipped out from under my feet, and I hit the back of my head on the right side on cement. I didn’t know how severe my concussion was until I went to the doctor a week later with symptoms such as: Blurry Vision Headaches Fatigue Not Feeling Like Myself Difficulty remembering things including locations, words, names, and more. Problems sleeping and waking up At the time, it was diagnosed as a "grade 3" concussion, which means I also had lost consciousness for more than 30 minutes. I was told to rest for a few months, and slowly I got back into my life over the next six months. I came to Cognitive FX in 2015 about 9 months after I sustained another concussion on the front right side of my head in a car accident. It has taken me time to be grateful for both of my injuries, but most importantly I am thankful for who and where I am now. I wanted to share 10 things I wish I would have known before I had a brain injury.
Grief and loss are a part of life, but they are the least talked about part of life. Have you ever wondered why that is? It is because grief is HARD. Going through it is difficult. We seem to feel if we avoid talking about it, we will avoid feeling grief entirely. Wrong. Maybe you have heard of the Stages of Grief, and maybe you haven’t. Either way, you are experiencing grief, due to a recent brain injury, concussion, TBI, or trauma. Learning about the stages of grief gives validation and understanding. But, know that there is no wrong way to grieve. There is only your way. Grief is unique. You may experience all of the stages, or you may not. In what order, for what length of time, or how severe it will be is unpredictable. Stages may last minutes, or months. Not knowing is the irritating part! Elisabeth Kübler-Ross and David Kessler developed the Five Stages of Grief as a framework to deal with death, dying, and loss of a loved one. More information can be found at grief.com. I believe these stages apply to all loss, including brain injury.
Discover a new level of understanding around concussions and how these injuries impact the lives of victims and their loved ones.
Out of all of the injuries a person can suffer in an automobile accident, brain injuries are probably one of the worst. The consequences of a brain injury are often severe and long-term. Brain injuries can be as minor as concussions, headaches, and dizziness or involve more serious conditions like memory loss or physical damage to brain tissue. Brain injuries can be difficult to detect and should be treated immediately by a medical professional.
Everyone’s experience is different. Anyone experiencing a concussion or TBI has a different story, different outlook on life, and different symptoms, their experience of EPIC Treatment is going to be different as well. With that said, here’s my experience. I was injured 17 years before I received treatment, and you can read more about how I got my injury in another post here if you are interested. Hopefully, my story validates some of your experience, gives hope, and provides direction. To begin with, I was surprised my schedule wasn’t more packed with activities. I questioned if this would work. I received over 25 hours of treatment during the week when I was expecting a 40 hour week. By the end of the week, I appreciated that I didn’t have a 40-hour schedule because I don’t think my brain could have handled it. Day One: I walked into the office on Monday morning. I was handed the check-in questionnaire. I filled out the Post Concussion Symptom Scale (PCSS) check-in and check-out questionnaire each day of treatment. CFX uses the questionnaires to monitor symptoms throughout the week, and is used as a measurement in their research. As I sat down to complete the simple form, I started to cry. I’m not against crying, but it takes a lot to push me to tears. I wasn’t sure what was going on. I called my husband. He said a quick “Focus, give it your best, and I love you.” Then I met Porter. Porter is one of the Patient Care Coordinators and I really felt support from him while I was at Cognitive FX. I didn’t have any idea what to expect. I was nervous. He gave me a tour, and we got started. *Sometimes you might also have an fNCI on your first day. I got my first scan done before I started treatment for my brain injury.
I was in an auto accident on January 2, 2001. I received a severe TBI, broke my back, pelvis, jaw, ribs, and pretty much every bone in my body. I was grateful to be alive, but after a few years I had accepted the fact that I was going to be deficient for the rest of my life.
A concussion is defined as “the result of the forceful motion of the head or impact causing a brief change in mental status (confusion, disorientation, or memory loss), with or without a loss of consciousness.”